(BMJ Open, 2021)
This paper presents a complete audit of data redaction practices in all active technology appraisals (TA) and highly specialised technology (HST) evaluations issued by the National Institute for Health and Care Excellence (NICE) from the conception of the Institute to September 2019. Over 81.6% of appraisals feature data redactions. Data redaction increased substantially over time, and is currently at its highest level with 100% of TAs having at least some data redaction in 2019/2020, 96% of appraisals in 2018/2019% and 94% of appraisals in 2017/2018. Policy changes are needed to stop clinical data redaction practice at NICE.
UK government refuses to discuss ‘alarming’ NICE data redactions
Pressure Builds On England’s HTA Body & Industry To Reduce Data Redaction